Dear Body. Part 3

I was going to write about our recent travels, but thought I would reply to my last 'letter' found here.
In a way it fits in with parts of my holiday, but I will fill you in with that later.

Dear Body,

Thank you for listening to me and reminding me of how important you are.  I will try and listen to you and remember the good times.
I understand that I don't treat you as well as you deserve and I'm glad that you reminded me of this.
I don't mean to hurt you, but sometimes I am so overwhelmed with shame I just don't know how to deal with it.
You are my punchbag.
I question if trying to shape you into something different has any benefit to me at all, or has it been so long that I'm scared to step outside of my comfort zone?
I will be taking you on holiday soon.  I cannot promise that I won't give you a hard time, but I will try not to put you under too much pressure or compare you with other bodies.
I need to be building you up, not knocking you down.

I have had many comments on how slim you are and that makes me feel good.
How does it make you feel when I keep you hungry and wear you out?
How do you feel when I eat too much and go to bed feeling sick?
When you shout back at me, is that you or is it in my head?
How do you feel when I argue back?
So many unanswered questions tearing me in pieces.

Jackie

Dear Jackie

You may recall my 'Dear Body' post, if you haven't read it, you can find it here.
After writing to my Body I then had to respond as my body.  All seems a bit weird you may think, talking to myself, but the process was quite empowering.
Again I tried not to overthink what I was asked to do, but thought of it as me replying to a friend.

 Dear Jackie,

You were so small and vulnerable when you were born.  I wasn't sure you would survive but you battled on.  I wonder if sometimes you feel like that now?
I know you dislike me, you tell me often enough  You try to hurt me with your thoughts and actions but I'm still here for you and I won't let you down.  You are a fighter.
You tell me how much you hate your stomach.  You see fat and disgust.  I see a part of you which held your child close, a part of you which suffered physical pain for years and needed surgery to put right.
Don't be embarrassed or ashamed of your scars, they are part of your story.
You are so much more than what is looking back in the mirror.  Those scars on your hips show the pain you tolerated both physically and mentally.
You recovered from surgery and you pushed and pushed yourself until you passed that 26 mile mark.
I need to be cared for, loved, cherished and nourished. I know that one day you will feel this way towards me again.
Don't blame yourself for the things that have happened to me. Those things were out of your control, you didn't know any better.
Please, please try and treat me with the respect I deserve.  I hate to be in pain, especially in my head.
I would love to be friends with you again.

Your body xx

My dialogue with my body continues.  My next task is for my to again respond in a compassionate way.
Until next time.

it is what it is.

You look well?
 What the fuck does that mean?  Can you see inside my head? 
Society today is so hung up on personal appearance.  Photos are filtered, we can choose what to show to the rest of the world.
Social media shows what we want people to see, our perfect worlds, perfect friends, perfect lives.
Nobody really knows what is going on in others lives, its all a big fantasy. 

I live in a bubble, a bubble that my nurse once said she would pop.  My bubble keeps me safe, protects me from others and my own thoughts.
My illness is not all about weight.  If I was to gain 3 stone tomorrow would I be cured. Probably not.

Its not about wanting to stay ill, it's about knowing my limitations and how hard to push myself.
Hospital was a safe environment, one where I could weight restore and not have to deal with the aftermath of feelings on my own.  In the community is not so easy.

My therapist is working on compassion. Supporting me through trauma and all the feelings that sit alongside it.  Its tough.  We don't talk about food, how I'm managing my meal plan or how to move forward with weight gain.  I struggle with this but I am keeping myself safe.  My blood work is on the normal scale, I know what foods to eat to make sure I am getting the right nutrients.  My dietitian is happy.

Food restriction keeps me in control of my emotions, eating sends me into turmoil.
I often overeat and seek permission from my Husband that its OK to do so and I'm not greedy.  He tells me if I'm hungry to eat, this is normal behaviour and I need it. Rice Krispies are currently my go to food.
I have been open about my urges to purge or exercise and have admitted to times when the urges have been so strong I have lost control.
I am pulled in all directions and the slightest thing can send me into over thinking and fight or flight mode.
I need to talk about this as soon as it happens but does that make me needy?  Do I need to validate every single thought.
I hate my brain at the moment but this is all part of my recovery.  I hate how I'm feeling, that I'm not in control of my emotions, that I can break down at the slightest thing and want to run away from it all.
I have the crisis team number and I have come close at times to calling them.....I haven't needed to as I have managed to ride it through.  Not easy in a public place.
Thank you to those who told me last night that they liked my top.

My illness is not all about weight.....It is what it is.

xx

#alone

I have 429 friends on Facebook.

61 were work colleagues
40 I have known for over 20 years.
32 I have never met face to face.
28 don't live in the UK.
26 I went to school with.
17 are friends of friends.
18 I know through groups and forums.
13 are relatives.
12 were in hospital with me.
10 are old friends of Kevs
6 are ambassadors for Body Gossip.
5 I went to church with.

4 I met on holiday.

4 have passed away.
4 have been or are neighbours.

3 I have met at a support group.

2 were in Guides.
2 completed the D of E with me.
2 I speak to on a daily basis.
1 was my first kiss.

So why do I feel so alone?
I know my illness has affected a lot of my relationships, particularly the one with myself.
It has affected the way I feel, how I interact with others, how they interact with me.
Sometimes I feel so needy. I overthink everything. I'm unsure of what is safe to say so as not to hurt others.
My emotions can go up and down on an hourly basis, particularly with my therapy.
I am an unknown quantity. Sometimes the life and soul ,other times I don't want to interact and shut myself off.
I keep a diary of how I am feeling, what triggers certain thoughts and how I react to them.
It is hard.
I have amazing friends who I appreciate and love, so why do I feel I have nothing to offer?
Lack of daily social contact at work has shot my confidence down.
I find it difficult to socialise in large groups, I can talk over people as I struggle to know when its OK to interject.
I can get paranoid, anxious, talk too much .  Certain Music and situations can trigger flashbacks and take me right back to a place where I was scared and vulnerable.  I am working on this.


I am not lonely, I have a loving family and friends who I know support me.
 I am just alone in my head.


xx

Mental Health Awareness Week 2018 The past year.

Rydon

As the darkness descends, the noises begin

 Footsteps, the wails and the keys jangling.

 Mind numbing pills that alter your mood

Bad dreams and flashbacks, they still intrude.

Mountainous fences to hold madness in,

Pacing of corridors just to keep thin,

Queues at the hatch to get daily meds

Bells and alarms invading your head.

This is no hotel or holiday camp

The pillows aren't plumped but tear stained damp

There is no pass key to access the door

This is your safe place, until we say go.

As it is Mental Health Awareness week I thought it time I posted an update.

My therapy sessions are going well and yes ,Dom is still wearing the purple jumper on a Wednesday.  We have been working on compassion focused therapy which in a nutshell is showing compassion and kindness to yourself and challenging the negative and unwelcome thoughts. This is not something which comes easy to me and involves a lot of homework and self discovery.

So I want to look back on the past year and recognise the achievements I have made rather than focusing on what I haven't done.  Some of you may have kept up to date with my facebook posts but for those of you who haven't, this is my past year.

  Trigger warning............please do not read further if you may be affected by suicidal ideation or self harm.

May 15th I was in my psychiatrists office with my eating disorders nurse for what I thought was a normal appointment brought forward a few weeks. The previous month I had been in a very bad place despite  a glorious holiday and Birthday celebrations.

My disassociation had got worse; I would often find myself in places and not aware of how I got there.

I was not managing my depression or my food intake, was having scary memories and flashbacks and thoughts of suicide came thick and fast.  The rapid change from being ok, to feeling sad or numb was my norm

There is a difference between thinking of taking your own life and planning it.  My thoughts came at different times.  I could get up happy and quickly descend into darkness. When I was starting to get my affairs into order was the day everything changed....

My psychiatrist had arranged a bed for me at a local acute mental health hospital but wouldn't be available until later that day or the next day.

 It was time for the control to be taken away from me.  The threat of a section was hanging over me If I refused to be admitted.  My illness was consuming me and I still fought to hang onto it.

I was luckier than most. At least my admission was slightly preplanned so I had time to get some personal effects packed, some which were taken away from be on admission as they were deemed a risk to myself.

We travelled to Taunton in silence, it was very daunting and I was terrified.

When we arrived at the ward a nurse introduced herself and took away my bags to be checked.She then offered to show us around the ward.  By this point I was already breaking down so we went straight to my room.  It was basic and sparse,  all ligature points had been removed meaning there were no taps just sensors, no headboard, no toilet seat, all furniture was foam and plastic, it was a 'safe place.' 

Kev said it was the worse day ever leaving me there.  I am so sorry for all the pain I put him and my family and friends through and will always be thankful for their support.

I was lucky to receive many visitors during my stay.  I had mixed reviews on whether they thought it was the right place for me.  I too had similar thoughts.  I didn't feel I fitted in and certainly didn't feel ill enough or deserving of the staff support.  In hindsight I now believe it was the right place.  It served a purpose, helped me to adjust to my medication and kept me safe.

I won't go into great detail about my admission but there are many things that stood out.
I began to recognise staff my their footsteps in the corridor.  I would cry at the noises at night, conflict between patients, the sounds of keys and the girl opposite banging her head on the wall.

I kept myself to myself at first, waiting until everyone had finished before I went into the dining room or sitting on my bed with the door locked. The thought of having to eat with strangers or being watched was paralysing.
 The patients came and went,many came back.  I was thankful to meet a few ladies who I was on a level with and we spent many evenings chatting and watching TV in the female lounge.  I am happy to say that they are both doing well and we meet weekly for coffee.

Most of the staff were caring and supportive although we did have a staff nurse who I named Nurse Ratchett.  If you have ever seen one flew over the cuckoos nest you will understand.
The ward was not set up for patients with eating disorders and often my support was inconsistent with my care plan, and recommendations from my Nurse and Dietitian were not followed.  Nurses said they did not have the skills to help me and I will admit to using this to my advantage at times.
I had a real insight into how people I support may feel.  Especially when your movements are restricted.

Because of my low BMI my activity was restricted.  I tried using the activities room but often it was closed due to staff shortages so we were left to occupy ourselves.  The day I was allowed to use my headphones was definitely a highlight.
At first I was allowed out for a walk with the staff or my visitors but this was soon restricted as I was  deemed to be burning too many calories. My Psychiatrist thought I was cycling!  I was actually going out on the back of Kevs motorbike.  The thought of Kev cycling from Burnham to Taunton would be a site to behold.
One Nurse was always happy to take me out for my 15 minutes 'exercise' so she could have a crafty cigarette, others were not so keen.  It makes me smile when I think of the staff member who said she didn't like walking so was not keen on taking me out.  I soon got her lost and exceeded my exercise time.

We had weekly ward rounds which consisted of myself, a nurse, Dr and the psychiatrist discussing my progress, future plans and home leave.
For the first few weeks I was not allowed leave but this didn't stop me asking Kev to take me home one day with a promise I would return.
The feeling of being in normal surroundings, my sofa, using my toilet and own bath made me appreciate all I have.  It was difficult to return to a place where I was not allowed to be free.
The future plan was to wait for a bed at an eating disorders unit in Bristol.  Unfortunately beds are not readily available so after my discharge from Rydon I waited another 5 weeks to move to the specialist unit.  I will save that for another post.

Back to friends.  I am thankful for all the cards, letters, gifts, visits, messages and videos that got me through.  In such a dark place they brought light to my day.
There has always been a stigma around Mental Health units and I want to stress to anyone reading this, do not feel ashamed or judged.  No-one bats an eyelid if you are inpatient for a broken limb, a broken mind is no different.
My story continues.

Tell It How It Is.

I have heard the phrase 'Recovery is a journey,' many times. This is a journey 5 years ago which I thought and hoped had ended.  Most journeys end with something pleasant, something worth the wait, with a clear road, no red lights or diversions.
 Other journeys may need a bit of refuelling, a top up of oil and a battery recharge before reaching the final destination.
So where did I take a wrong turn?
Why is this shiny new Porsche  now feeling like a burnt out old banger!!

I knew that it would never be an easy ride as I'd driven this road before but I thought I knew which way  I was steering. I didn't expect to be back in a dark tunnel, but maybe this is how 'it' maps out.
I can see how it started and I know how it can end.

The depression kicked in first. Slowly bringing me down, putting me down , letting me down.
Its friend anxiety paid me a visit too, preying on my every thoughts, picking at my confidence, whispering over my shoulder to do better, sitting on my chest and squeezing the breath out of me, taking away my voice, my passions, my beliefs in me. My trips outside became less and less and usually included earphones in, head down, and panic. My time indoors would be spent just sat, doing nothing.
I stopped being I will, and became I can't.

The energy it takes on a daily basis to function in this frame of mind is immense.  Not answering the door unless I am expecting someone, hiding in my bedroom away from the noise.
The fear of being outside, in places where I can't get away, where I don't feel safe. Where I think people are looking at me because 'They know.'
Sleeping for most of the day through medication or just the sheer need for rest, and not being able to do a simple task without needing a rest again.  Having a really good day then feeling it emotionally and physically the day after because you have given as much as you can.
The food issues wheedled their way in.....skipping meals due to lack of time, routine or circumstance.  What started as something most people do, was sneaking up on me and waiting to catch hold.
I didn't recognise it at first, but others did.
I was questioning my relationship around food and making excuses to myself and others.
'Its the medication, its a normal reaction to being depressed, I eat every day, but I'm not underweight.'
Yes, all the above is still true, but why I am feeling driven to continue, why can I not eat 'normally,' why do I get anxious around food.'
The fact that I am still questioning myself is a positive thing. It means I still have my healthy voice telling my ill voice that I don't want it.
Often my ill voice wins, but the healthy voice is still up for the fight.


Things are getting better.
I am less tired and more focused this week.  The tablets seem to be doing some good and a friend suggested grounding techniques and mindfulness, something I never thought would be for me, but so far so good.
I am aiming to get out each day.  Either for a walk, a visit to a friend or the dreaded supermarket.
I am now getting quite good at focusing and counting on items at the checkout to bring me back to the here and now, rather than the anxiety and sensations of panic.
I set myself goals, however small or insignificant and try not to berate myself if I haven't managed them.

I have seen a nurse at my local practise for bloods etc. A counsellor told me to think of this as self care as opposed to medical.  I think she was right.  I am lucky that I am still classed as being within a healthy weight range for my height ( I've apparently shrunk!!)  I have to tell myself this does not mean that I do not need or deserve any professional help, The only person judging me is myself.

This is me getting off the highway to hell and back on the road to recovery.

Eating Disorders Awareness Week 2014. Fact v Fiction.

Today marks the beginning of Eating Disorders Awareness Week in the UK with B-eat, the national ED charity using the tagline, "Sock it to Eating Disorders."

Throughout this week I will be writing about focusing on  recovery and all the ups and downs that go with it, but first lets take a look at what some people think Eating Disorders are actually about.....

About Getting Attention.

Interesting concept!!  Since most people with an eating disorder try to hide their illness, this is almost laughable.  I did all I can in the beginning to hide my illness, at times just wanting to be invisible.  I hated the idea of people looking at me or checking up on me. II just wanted it to be me and my Anorexia.

A result of the media, fashion or Hollywood.

Ok. We all know about airbrushing and the so called ideal, unobtainable body image which jumps out at us from every glossy magazine stand.  We know about the huge pressure all of us, particularly Women are put under by advertisers to be slimmer, younger, sexier, but this does not cause eating disorders.  Yes, it can cause low self esteem and negative body image which can trigger people who are succestible to ED, but in general they do not cause them. When I was a young girl I hardly watched TV. There was no internet, and the only role models I looked up to were photo love stories in Jackie magazine.

Only serious when the person is emaciated.

There is a serious flaw in the system when you go for help.  After actually plucking up the courage to see a GP, you are told you are not light enough!!  Seriously?  I need to go home and starve myself a little bit more in order to warrant help!!  Total bullshit!! My last experience of a GP I have to say was much more positive, so don't let this put you off asking for help.

The effects that purgeing can have on a body is immense.  Most people with ednos or Bulimia are of an 'normal' weight. But the damage that is going on inside their bodies is dangerous and needs to be taken seriously.

Girls only get Eating Disorders.

More and more men are being treated for an eating Disorder. Out of the 1.6 million people in the UK who have an eating disorder, 11% are male.

ED's are glamorous.

Rotting teeth, red knuckles, hairy backs, bones jutting out, thinning hair, brittle bones, sunken face, puffy cheeks, blood-shot eyes.  Can't see that being this seasons look can you?

Always Visible.

You have probably met someone this past month who has an eating disorder and you wouldn't even notice.  They do not discriminate and can happen to anyone whatever sex, size, age or colour.

Impossible to recover from.

Very difficult and a lot of hard work, but not impossible.

If you or someone you know is affected by an eating disorder, please seek out help, either from your GP, college, school counsellor or Nurse, or access support websites. beat sweda Neda

You don't need to go through this alone. xx

I have a very skinny brain......

Eating Disorders Awareness

Many people with eating disorders, particularly anorexia, will talk about the conflict within their head, their anorexic voice, and I was no different.

I felt like I was being constantly tested. Food was everywhere, in shops, in my kitchen, on TV, in magazines, the temptation was painful but the feeling when I denied myself and didn't give in was so worth it, or so I believed. That was what my Anorexia was telling me.  It had gotten into every part of my being and was biting away at my personality, my character, my relationships, my thought processes and my ability rationalise or reason.

What I didn't realise was that starvation has a funny effect on the brain!  The brain ultimately is an organ, this needs nutrition just like other organs in your body. If you deprive your body of the nutrition it needs you are also starving your brain.  Your thinking will be slow and foggy, you will make bad choices/decisions, lack in concentration and will constantly think about food!!  Unfortunately the more starved you become the worse the Anorexic thinking becomes.  Its a vicious circle and the only cure is to eat.  As easy as that? Not quite!!

One thing that changed for me during recovery was reading the Minnesota experiment which explained easily what happens to a person during starvation. Have a read. You may be surprised.

It certainly helped me to understand what I was doing to my body, why I was thinking the way I was and what to expect during recovery.  

So if you know someone with Anorexia, please don't tell then to just eat or snap out of it. Don't expect them to see themselves how you are seeing them, its so much bigger than that. Support and listen........

Once I was able to begin eating again I was able to work on my triggers, deal with the emotional feelings surrounding eating and  to tell that Anorexic voice where it could get off  and never, ever come back.  But that's a story for another day ....