Friends with benefits.

I bet the title made you look.
Don't worry, I'm not talking about those sort of benefits.
Over the past 8 years I have friended or followed dozens of people within the eating disorders community.  The forums and groups were a safe place to go, not judging, always there and often gave helpful advice and reassurance. (Although I am writing this after being shot down for saying something on a group)

There was always a downside.  Depending on how entrenched I was in my eating disorder I would follow people for the wrong reasons.
I would look at photos of very thin girls, 'thinsperation' as it is known in the pro-Ana community.
I have never been pro-Ana but the pull towards those people was always strong.

Over the years I have learnt that these relationships are not always healthy.  I have always been open to others, made myself available online to those who need to talk but sometimes that needs to stop.
I often go through Facebook and have a friend cull. There's never any malice involved but If I find someones behaviours or attitude too triggering or negative I need to say goodbye.
If there is little benefit to the relationship then they need to go.  I'm sure at times people have done that to me and that's OK.  Its about what is right for you and what is beneficial.
I know I could just stop following but there is always the risk of taking a little peek. A risk I cannot take.

I now have a select number of friends from the ed community on social media, these are my friends with benefits.  Friends from all over the world, people I trust and many I am honoured to have met.
Let me tell you about a few of them...........

Jenn Friedman.
A lovely woman from Brooklyn, New York who I stumbled across in 2010 on an eating disorders recovery forum. She is an amazing writer, singer songwriter and pianist. 
Jenn was part of a blogging group which fuelled my passion for writing.  She and several others took part in a recovery blogging challenge where we were given daily prompts, and shared online.
It was amazing to hear others voices and totally changed my views on a possible recovery.
Her recent album and book she published are pride of place on my bookshelf.  She has the voice of an angel.
I was lucky to meet Jenn in 2016 on her first visit to the UK.  She was everything and more than I expected.  I took her to Glastonbury for the day and we laughed and laughed. I love her accent, the way she says bathroom, how she felt comfortable enough to rest her head on my shoulder on the long bus journey home.  I laughed at her misunderstanding when I said 'Mary Quant.' She is a joy to be around.  I'm sorry she left her cake in the shop but happy that I taught her how to swear in a northern accent.
Jen is now studying in London and we plan to meet next month in Bath.  I cant wait.

Kathryn

I have been chatting to Kathryn online since 2016.  We were both struggling with our eating disorder and at different stages of contemplation.  We were a good support for each other.

I smile when I think of the late night chats, the drunken facetimes and the deep conversations one Christmas day. I was honest with Kathryn and I think she respected that.  I even got away with calling her a knob.

I love the fact that Kathryn savours ever moment with her family, school holidays are full of good memories, she is a strong passionate woman who would do anything for her family.  I value Kathryn's input but she has yet to tell me why shes goes with the nickname of Bruce!

A few weeks ago I took the plunge and travelled to Liverpool to meet her.  A bit strange you may think. Meet a random person and stay at her house.  Isn't that something that my Mother warned me about?

Thankfully she wasn't an axe wielding murderer, just a very friendly, cocktail loving Scouser with a lovely family.

She was an amazing host and I was made to feel at ease as soon as I got to Liverpool.

We had so much in common, even down to her getting ready to go out playlist. I spent a great day with the children and an even better night out hitting the bright lights of Liverpool with K and her Hubby.

We laughed about the 'urban legend' who was a real person, Purple Ackey the bogeyman of Merseyside.  We sang along to the Greatest Showman and I was in awe of her banter with the taxi driver.............

Entertainment and alcohol aside, we clicked.  We had experienced similar things growing up and dealt with it in not so positive ways.  I was amazed at how relaxed I felt especially around food.  They were very accommodating and thoughtful. Her daughter even gave up her room for me, although I did end up with several soft toys and a little girl on the bed in the morning.

Thank you Kathryn and Dave for accepting me into your home.  You are a diamond.

Online friends can be beneficial.... but choose your friends wisely.  

it is what it is.

You look well?
 What the fuck does that mean?  Can you see inside my head? 
Society today is so hung up on personal appearance.  Photos are filtered, we can choose what to show to the rest of the world.
Social media shows what we want people to see, our perfect worlds, perfect friends, perfect lives.
Nobody really knows what is going on in others lives, its all a big fantasy. 

I live in a bubble, a bubble that my nurse once said she would pop.  My bubble keeps me safe, protects me from others and my own thoughts.
My illness is not all about weight.  If I was to gain 3 stone tomorrow would I be cured. Probably not.

Its not about wanting to stay ill, it's about knowing my limitations and how hard to push myself.
Hospital was a safe environment, one where I could weight restore and not have to deal with the aftermath of feelings on my own.  In the community is not so easy.

My therapist is working on compassion. Supporting me through trauma and all the feelings that sit alongside it.  Its tough.  We don't talk about food, how I'm managing my meal plan or how to move forward with weight gain.  I struggle with this but I am keeping myself safe.  My blood work is on the normal scale, I know what foods to eat to make sure I am getting the right nutrients.  My dietitian is happy.

Food restriction keeps me in control of my emotions, eating sends me into turmoil.
I often overeat and seek permission from my Husband that its OK to do so and I'm not greedy.  He tells me if I'm hungry to eat, this is normal behaviour and I need it. Rice Krispies are currently my go to food.
I have been open about my urges to purge or exercise and have admitted to times when the urges have been so strong I have lost control.
I am pulled in all directions and the slightest thing can send me into over thinking and fight or flight mode.
I need to talk about this as soon as it happens but does that make me needy?  Do I need to validate every single thought.
I hate my brain at the moment but this is all part of my recovery.  I hate how I'm feeling, that I'm not in control of my emotions, that I can break down at the slightest thing and want to run away from it all.
I have the crisis team number and I have come close at times to calling them.....I haven't needed to as I have managed to ride it through.  Not easy in a public place.
Thank you to those who told me last night that they liked my top.

My illness is not all about weight.....It is what it is.

xx

I am sorry

I am sorry.....

My heart feels like a knife has been driven through it.

Therapy brought up feelings of sadness, shame, disgust, embarrassment.

At the moment I don't want to feel. Feeling hurts.

It was like being back there, in that moment.  I tried so hard not to cry, not to show my weakness.

There were so many things I wanted to say and so many reasons why I couldn't.

Today I learnt of a friend of a friend who has died.  She was young, she was beautiful, she needed help.

I feel for her family and those she left behind.

I feel for those I love, those who find it hard to cope being around me because I upset them too much.

I feel for the child that I nurtured, who I care for deeply who is hurting. 

I have caused that pain and it only adds to mine.

What you are feeling, I am feeling too.

Must do better.

The past week has been exhausting. I tried to put the anger I felt after I was dismissed from my job into something positive.  I emailed the company suggesting they revised the way they support staff with a mental health problem, and received the bog standard ' we take all our employees health and well being seriously' email back.

I have been trying to focus on the positives after going through a week of emotions and separating them from the facts. Although I may not agree with their decision, I understand why they made it.

Today I received another blow. 

My care coordinator/eating disorder nurse who has been working with me since late 2016 has made the decision to transfer my care to Dom my therapist. This is not all bad as we have a good therapist/patient relationship but unfortunately the sessions are time limited.

My nurses reasoning for the change, is that I am not managing weight restoration and have only maintained for the past few weeks.

After my discharge from Hospital (that's for another blog post) I agreed to reach a certain BMI, this was unsuccessful so the goal was decreased and then we compromised on a  maintenance weight.

Although I am engaging in weekly therapy, I know if my weight drops, cognitively I will not be able engage properly as starvation has a detrimental effect on the brain and your way of thinking. 

I would be lying if I said I didn't know this was coming.

NHS waiting lists for eating disorder outpatient treatment are long and although the ed team in Somerset has increased over the past 8 years they still struggle.

So where does that leave me now?  

I feel sadness at the loss of my support; failure that I was unable to stick to my meal plan; guilt that I have let my friends and family down; not good enough, rejected and alone.

Above all I feel scared. Very scared. 

I understand the reasoning behind the decision, (must try harder) and am trying to use wise mind as opposed to emotional mind.

Someone on a facebook group said to me, 'Please don't take it personally or use it as a reason to mistreat yourself.'  She is very right. I did not use my 'go to' behaviours instead I used compassion and kindness towards myself, something I struggle with daily.

Tomorrow is another day, another small step, another learning curve.

If all I can do at the moment is keep myself safe then that is enough. 

Must do better.

Advent Calendar. Day 8.

Candles are lit as darkness falls - what light shines in your darkest times?

On the first night of Hanukkah thanks is given for miracles, strength and sustenance -

what in your life is miraculous?

What are you thankful for?

What brings light to your world?

"May the lights of Hanukkah usher in a better world for all humankind."

~ Unknown ~

To live in the dark, to see no light at the end of the tunnel, to see no hope, no future is one of the saddest places to be.

The transition from darkness to light is hard, painful but joyous.

The freedom from depression, from pain, guilt and self-hatred is worth celebrating.

So when I think of light I think of my life, my family and my friends. 

I am thankful for my support network and my strength and resilience.

 I am thankful for my opportunities, my experiences. 

Above all,I am thankful for my life.